Wednesday, April 25, 2012

Don't Ignore... the part you play

If you have someone in your life who is battling infertility, rather it's a best friend, cousin, daughter, or just a coworker, you owe it to them to be aware of the role you can play in their life.

You can ask us something nosy and out of place, and send us into a downward spiral.
You can tell us your unwanted "advice" that belittles the very real pain we feel.
You can ignore or avoid us, and make us feel even more alone


You can say "I'm so sorry."
You can hug us.
You can just listen. (I know... you forgot that was possible right? Lol.)
You can hand us a tissue.
You can tell us you are there to listen, if we want to share.
You can pray for us, and tell us you are doing so... because that's the best thing anyone can give us.
You can do a little research, just to better understand what we are going through and how it affects us.
You can support our decisions, rather that decision is to seek medical treatment, artificial insemination, IVF, adoption or to just accept things for the way they are.

What will you choose to do?

For more information on infertility and how to support those struggling, please visit RESOLVE's website.

Tuesday, April 24, 2012

Don't ignore family building alternatives

As a part of National Infertility Awareness Week, I want to take a moment to recognize a very important family building option: Adoption.

Please take a moment to visit this page and learn about the Adoption Tax Credit bill and help by signing the petition.

Adoption Tax Credit

Sign it for those who battle infertility and choose to adopt to build their family.
Sign it for those who willingly choose to adopt as their first choice for starting/building a family.
Most importantly, sign it for those little boys and girls desperately needing a loving home. Because this tax credit makes it more possible for those struggling financially, to adopt.

Sunday, April 22, 2012

Don't ignore the pain

During NIAW, bloggers around the nation are uniting to bring awareness to this hidden and misunderstood disease.

One of the biggest things we long for when battling infertility, is for those around us to recognize our pain.

Don't belittle our pain. ("Well at least you are still young.")
Don't ignore our pain.
Don't try to sugarcoat our pain. ("Well at least you get to sleep in on Saturdays.")

I go home every night and make dinner for my husband, then think during our down time about how much I would love to have a little one to be playing with, bathing, dressing for bed, singing to, rocking... the list goes on.

I no longer even enjoy sleeping in. Every Saturday when I sleep late, I wake up and look at the clock, then immediately feel that common bang of sadness hit as I think about how most people my age have been up for a couple of hours by now chasing their kids around.

The ugly truth is, infertility hurts in a million ways and can sneak up on us from out of nowhere. One minute I am laughing as I watch America's Funniest Home Videos, the next I am crying because of the adorable pampers commercial that just went off. One week I am hopeful because a new month has arrived, a new shot at this. 2 weeks later an even greater hope comes along. Then, another 2 weeks go by and a negative pregnancy test marks yet another month passing without our dream coming true.

It's hard. It's an emotional roller coaster. And above all, it's lonely. It's lonely because people either a) don't know what to say, so they chose to avoid us and say nothing. Or b) they were great supporters to us for a while and have gotten tired of trying to be there for us month after month. There's also the fact that all of the people we really love spending time with, have their own kids, which on most days it just hurts too much to be around.

So please, stop ignoring our pain.

Just be a listening ear or a shoulder to cry on.

National Infertility Awareness Week

April 22-28 is the one week our nation recognizes Infertility. National Infertility Awareness Week (NIAW) is our chance to make this disease better recognized and understood.

This year's theme is Don't Ignore Infertility. And that theme really sums up the purpose for the Walk for Hope that Clint and I will be walking in come June.

Last year during NIAW, I took a big step and made my infertility public knowledge. Until then, only a handful of treasured and highly trusted friends knew the struggle we were experiencing. I was tired of the secrecy, the vagueness, and faking our happiness on really dark days. It's hard to understand why infertility is hard to share/talk about, until you are experiencing it. Even being on this walk of infertility, it's still difficult to explain the secrecy that feels necessary. So "coming out" and telling your world that you are fighting infertility takes a lot of bravery for most of us.

The first year I learned about NIAW, I honestly thought to myself that it would be the only year I would go through that week as someone struggling with the disease. When NIAW came again for me last year, it was a very difficult time of reflection and realizing that another year had passed without our desperately longed for baby. So I decided to toughen up and share our struggle with friends and family. And I am so glad that I did.

While it did not gain us as much support as we had hoped, it did gain a few really awesome supporters. I had hoped it would make others more aware of the things they say, to us and in general. I can't say that this happened though. The problem is how little the general population know about infertility, let alone how little they understand it. This is why NIAW is so very important to those of us who are battling infertility and those who did battle it but overcame it. If people would take the time to learn just a little about infertility and how it emotionally can affect people, they could avoid causing a great deal of unintended pain. I made a post about Infertility Etiquette a few weeks ago, of an article posted by RESOLVE that truly gets to the heart of how peoples careless statements and questions cut us so deeply. And I will say it again: I wish I could make all of our family and friends read it and really truly reflect on it. I actually wish everyone would read it, so the world might be just a bit more respectful of the sensitivity that infertility brings.

My goal during this years NIAW, is to post multiple blog posts on Infertility and the importance of not ignoring it. The more we share about this, the more people we will reach.

So here's to hoping that this week will make millions more aware of infertility.

Thursday, April 12, 2012

One step forward

We registered for the "A Family of my Own" Fertility & Adoption Conference in D.C. next month.

So I go to D.C. this coming weekend for a work conference, then back 2 weekends later for the Fertility/Adoption Conference, and one last trip in June for the Walk for Hope.

I am super excited, despite my despise of D.C. I am hoping the 2 conferences are great learning experiences and that the walk makes us feel far less alone in this battle.

Monday, April 9, 2012

You are...

Feeling down? Depressed? Hopeless?

Having one of those days when you feel like you fail at everything you attempt?

This song is the great reminder we all need on our down days. It really makes me stop and think in a new perspective.

He made EVERYTHING glorious... and He made you... so, just what does that make you?


(Because we are forgiven.)

Wednesday, April 4, 2012

Infertility Etiquette

Thank you, RESOLVE, for putting it all in words for us.

Infertility Etiquette

Chances are, you know someone who is struggling with infertility. More than seven million people of childbearing age in the United States experience infertility. Yet, as a society, we are woefully uninformed about how to best provide emotional support for our loved ones during this painful time.

Infertility is, indeed, a very painful struggle. The pain is similar to the grief over losing a loved one, but it is unique because it is a recurring grief. When a loved one dies, he isn't coming back. There is no hope that he will come back from the dead. You must work through the stages of grief, accept that you will never see this person again, and move on with your life.

The grief of infertility is not so cut and dry. Infertile people grieve the loss of the baby that they may never know. They grieve the loss of that baby who would have had mommy's nose and daddy's eyes. But, each month, there is the hope that maybe that baby will be conceived after all. No matter how hard they try to prepare themselves for bad news, they still hope that this month will be different. Then, the bad news comes again, and the grief washes over the infertile couple anew. This process happens month after month, year after year. It is like having a deep cut that keeps getting opened right when it starts to heal.

As the couple moves into infertility treatments, the pain increases while the bank account depletes. The tests are invasive and embarrassing to both parties, and you feel like the doctor has taken over your bedroom. And for all of this discomfort, you pay a lot of money.

A couple will eventually resolve the infertility problem in one of three ways:

They will eventually conceive a baby.
They will stop the infertility treatments and choose to live without children.
They will find an alternative way to parent, such as by adopting a child or becoming a foster parent.

Reaching a resolution can take years, so your infertile loved ones need your emotional support during this journey. Most people don't know what to say, so they wind up saying the wrong thing, which only makes the journey so much harder for their loved ones. Knowing what not to say is half of the battle to providing support.

Don't Tell Them to Relax

Everyone knows someone who had trouble conceiving but then finally became pregnant once she "relaxed." Couples who are able to conceive after a few months of "relaxing" are not infertile. By definition, a couple is not diagnosed as "infertile" until they have tried unsuccessfully to become pregnant for a full year. In fact, most infertility specialists will not treat a couple for infertility until they have tried to become pregnant for a year. This year weeds out the people who aren't infertile but just need to "relax." Those that remain are truly infertile.

Comments such as "just relax" or "try going on a cruise" create even more stress for the infertile couple, particularly the woman. The woman feels like she is doing something wrong when, in fact, there is a good chance that there is a physical problem preventing her from becoming pregnant.

These comments can also reach the point of absurdity. As a couple, my husband and I underwent two surgeries, numerous inseminations, hormone treatments, and four years of poking and prodding by doctors. Yet, people still continued to say things like, "If you just relaxed on a cruise . . ." Infertility is a diagnosable medical problem that must be treated by a doctor, and even with treatment, many couples will NEVER successfully conceive a child. Relaxation itself does not cure medical infertility.

Don't Minimize the Problem

Failure to conceive a baby is a very painful journey. Infertile couples are surrounded by families with children. These couples watch their friends give birth to two or three children, and they watch those children grow while the couple goes home to the silence of an empty house. These couples see all of the joy that a child brings into someone's life, and they feel the emptiness of not being able to experience the same joy.

Comments like, "Just enjoy being able to sleep late . . . .travel . . etc.," do not offer comfort. Instead, these comments make infertile people feel like you are minimizing their pain. You wouldn't tell somebody whose parent just died to be thankful that he no longer has to buy Father's Day or Mother's Day cards. Losing that one obligation doesn't even begin to compensate for the incredible loss of losing a parent. In the same vein, being able to sleep late or travel does not provide comfort to somebody who desperately wants a child.

Don't Say There Are Worse Things That Could Happen

Along the same lines, don't tell your friend that there are worse things that she could be going through. Who is the final authority on what is the "worst" thing that could happen to someone? Is it going through a divorce? Watching a loved one die? Getting raped? Losing a job?

Different people react to different life experiences in different ways. To someone who has trained his whole life for the Olympics, the "worst" thing might be experiencing an injury the week before the event. To someone who has walked away from her career to become a stay-at-home wife for 40 years, watching her husband leave her for a younger woman might be the "worst" thing. And, to a woman whose sole goal in life has been to love and nurture a child, infertility may indeed be the "worst" thing that could happen.

People wouldn't dream of telling someone whose parent just died, "It could be worse: both of your parents could be dead." Such a comment would be considered cruel rather than comforting. In the same vein, don't tell your friend that she could be going through worse things than infertility.

Don't Say They Aren't Meant to Be Parents

One of the cruelest things anyone ever said to me is, "Maybe God doesn't intend for you to be a mother." How incredibly insensitive to imply that I would be such a bad mother that God felt the need to divinely sterilize me. If God were in the business of divinely sterilizing women, don't you think he would prevent the pregnancies that end in abortions? Or wouldn't he sterilize the women who wind up neglecting and abusing their children? Even if you aren't religious, the "maybe it's not meant to be" comments are not comforting. Infertility is a medical condition, not a punishment from God or Mother Nature.

Don't Ask Why They Aren't Trying IVF

In vitro fertilization (IVF) is a method in which the woman harvests multiple eggs, which are then combined with the man's sperm in a petri dish. This is the method that can produce multiple births. People frequently ask, "Why don't you just try IVF?" in the same casual tone they would use to ask, "Why don't you try shopping at another store?"

Don't Be Crude

It is appalling that I even have to include this paragraph, but some of you need to hear this-Don't make crude jokes about your friend's vulnerable position. Crude comments like "I'll donate the sperm" or "Make sure the doctor uses your sperm for the insemination" are not funny, and they only irritate your friends.

Don't Complain About Your Pregnancy

This message is for pregnant women-Just being around you is painful for your infertile friends. Seeing your belly grow is a constant reminder of what your infertile friend cannot have. Unless an infertile women plans to spend her life in a cave, she has to find a way to interact with pregnant women. However, there are things you can do as her friend to make it easier.

The number one rule is DON'T COMPLAIN ABOUT YOUR PREGNANCY. I understand from my friends that, when you are pregnant, your hormones are going crazy and you experience a lot of discomfort, such as queasiness, stretch marks, and fatigue. You have every right to vent about the discomforts to any one else in your life, but don't put your infertile friend in the position of comforting you.

Your infertile friend would give anything to experience the discomforts you are enduring because those discomforts come from a baby growing inside of you. When I heard a pregnant woman complain about morning sickness, I would think, "I'd gladly throw up for nine straight months if it meant I could have a baby." When a pregnant woman would complain about her weight gain, I would think, "I would cut off my arm if I could be in your shoes."

I managed to go to baby showers and hospitals to welcome my friends' new babies, but it was hard. Without exception, it was hard. Stay sensitive to your infertile friend's emotions, and give her the leeway that she needs to be happy for you while she cries for herself. If she can't bring herself to hold your new baby, give her time. She isn't rejecting you or your new baby; she is just trying to work her way through her pain to show sincere joy for you. The fact that she is willing to endure such pain in order to celebrate your new baby with you speaks volumes about how much your friendship means to her.

Don't Treat Them Like They Are Ignorant

For some reason, some people seem to think that infertility causes a person to become unrealistic about the responsibilities of parenthood. I don't follow the logic, but several people told me that I wouldn't ache for a baby so much if I appreciated how much responsibility was involved in parenting.

Let's face it-no one can fully appreciate the responsibilities involved in parenting until they are, themselves, parents. That is true whether you successfully conceived after one month or after 10 years. The length of time you spend waiting for that baby does not factor in to your appreciation of responsibility. If anything, people who have been trying to become pregnant longer have had more time to think about those responsibilities. They have also probably been around lots of babies as their friends started their families.

Perhaps part of what fuels this perception is that infertile couples have a longer time to "dream" about what being a parent will be like. Like every other couple, we have our fantasies-my child will sleep through the night, would never have a tantrum in public, and will always eat his vegetables. Let us have our fantasies. Those fantasies are some of the few parent-to-be perks that we have-let us have them. You can give us your knowing looks when we discover the truth later.

Don't Gossip About Your Friend's Condition

Infertility treatments are very private and embarrassing, which is why many couples choose to undergo these treatments in secret. Men especially are very sensitive to letting people know about infertility testing, such as sperm counts. Gossiping about infertility is not usually done in a malicious manner. The gossipers are usually well-meaning people who are only trying to find out more about infertility so they can help their loved ones.

Regardless of why you are sharing this information with someone else, it hurts and embarrasses your friend to find out that Madge the bank teller knows what your husband's sperm count is and when your next period is expected. Infertility is something that should be kept as private as your friend wants to keep it. Respect your friend's privacy, and don't share any information that your friend hasn't authorized.

Don't Push Adoption (Yet)

Adoption is a wonderful way for infertile people to become parents. (As an adoptive parent, I can fully vouch for this!!) However, the couple needs to work through many issues before they will be ready to make an adoption decision. Before they can make the decision to love a "stranger's baby," they must first grieve the loss of that baby with Daddy's eyes and Mommy's nose. Adoption social workers recognize the importance of the grieving process. When my husband and I went for our initial adoption interview, we expected the first question to be, "Why do you want to adopt a baby?" Instead, the question was, "Have you grieved the loss of your biological child yet?" Our social worker emphasized how important it is to shut one door before you open another.

You do, indeed, need to grieve this loss before you are ready to start the adoption process. The adoption process is very long and expensive, and it is not an easy road. So, the couple needs to be very sure that they can let go of the hope of a biological child and that they can love an adopted baby. This takes time, and some couples are never able to reach this point. If your friend cannot love a baby that isn't her "own," then adoption isn't the right decision for her, and it is certainly not what is best for the baby.

Mentioning adoption in passing can be a comfort to some couples. (The only words that ever offered me comfort were from my sister, who said, "Whether through pregnancy or adoption, you will be a mother one day.") However, "pushing" the issue can frustrate your friend. So, mention the idea in passing if it seems appropriate, and then drop it. When your friend is ready to talk about adoption, she will raise the issue herself.

So, what can you say to your infertile friends? Unless you say "I am giving you this baby," there is nothing you can say that will erase their pain. So, take that pressure off of yourself. It isn't your job to erase their pain, but there is a lot you can do to lesson the load. Here are a few ideas.

Let Them Know That You Care

The best thing you can do is let your infertile friends know that you care. Send them cards. Let them cry on your shoulder. If they are religious, let them know you are praying for them. Offer the same support you would offer a friend who has lost a loved one. Just knowing they can count on you to be there for them lightens the load and lets them know that they aren't going through this alone.

Remember Them on Mother's Day

With all of the activity on Mother's Day, people tend to forget about women who cannot become mothers. Mother's Day is an incredibly painful time for infertile women. You cannot get away from it-There are ads on the TV, posters at the stores, church sermons devoted to celebrating motherhood, and all of the plans for celebrating with your own mother and mother-in-law.

Mother's Day is an important celebration and one that I relish now that I am a mother. However, it was very painful while I was waiting for my baby. Remember your infertile friends on Mother's Day, and send them a card to let them know you are thinking of them. They will appreciate knowing that you haven't "forgotten" them.

Support Their Decision to Stop Treatments

No couple can endure infertility treatments forever. At some point, they will stop. This is an agonizing decision to make, and it involves even more grief. Even if the couple chooses to adopt a baby, they must still first grieve the loss of that baby who would have had mommy's nose and daddy's eyes.

Once the couple has made the decision to stop treatments, support their decision. Don't encourage them to try again, and don't discourage them from adopting, if that is their choice. Once the couple has reached resolution (whether to live without children, adopt a child, or become foster parents), they can finally put that chapter of their lives behind them. Don't try to open that chapter again.